I apologize for not updating this earlier, but this is the first chance that I’ve had to sit down and write!
Praise God, yesterday’s check-up went very well…things seem to be coming along, slowly but surely. As always, the normal ultrasound exam was done to examine Maria Isabella’s spine, the surgery site on her little back and also the progress of her brain development and fluids.
Along with last week, we couldn’t ask for a better situation….Maria Isabella is progressing along in this pregnancy and her ventricles haven’t increased in size(due to the fluid levels) since the surgery. This is a VERY good thing! The Chiari Malformation (or hindbrain herniation) which is one of the worst parts of having Spina Bifida, has actually reversed – allowing for a healthy flow of fluids to-and-from her head.
This is what they look for when they measure her ventricles (gratefully, Bella’s are A LOT smaller now!)
Our prayer is that the ventricle fluid levels remain constant, or if they increase at all, (which is somewhat common with Spina Bifida, and not necessarily a reason for alarm) that they don’t increase to a dangerous level.
Let me tell you, our little daughter constantly confirms her stubbornness. Every night between 8-10pm, little Bella is movin’ away, kicking and doing flips….but once we get in to the hospital for her ultrasound, she goes right back in to a breached fetal position. Unfortunately, her movements still cause Cristina some pain (and will continue to, until she is born) but it’s all a good sign because it means that she is kicking and moving her feet and legs and there has been no sign of paralysis!
As for me, I am back in NY for the weekend to get a few things done here at the Office and at our apartment, (we are moving things out because we can’t afford rent at a place we aren’t even living in) but I will return to be with Cristina on Monday morning. Look at the gifts we received when I came in to the office today:
Please continue to keep Cristina and Maria Isabella in your prayers…..thank you all who have been praying for us…who have mailed us or sent us things that have kept us busy during this time of waiting! Your support means so much to us…God bless you!
Also – everyone should see this little video that a mother made of her children….it’s pretty amazing…but with the rough statistic of 93% of babies diagnosed with Down Syndrome, it’s a definite tearjerker!
God bless you all!
Andrew, Cristina and Maria Isabella Pocta