Tag Archives: Myelomeningocele

Looking ahead in awe

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Our Christmas picture:

Christmas 2014

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There’s not much to say in this post. We have spending a lot of time in awe of our daughter and the Grace and Strength that Our Lord has given her…..especially in the last 2-3 weeks.

For a while we were worried that Maria Isabella was a little too attached or dependent on mommy and daddy, (we’re definitely happy about her having an attachment to us, her parents, but feared that her needing to be carried around would cause additional dependency) but have seen her break out of her shell in the past few weeks.

We sat talking on the couch one afternoon last week and it hit us. During a quiet moment in the conversation, we heard…..silence. Cristina anxiously looked around and our little ‘bug’ (as we affectionately refer to her – a term coined by her cousin Daniel, who couldn’t pronounce Isabella or Bella) was nowhere to be found! She had traveled off in her wheelchair, in to the bathroom to find her toothbrush!

This was the moment we had dreamed about (and I’ll admit, cried many nights about)……something we looked around and saw in our other friends with children her age…..exploring the world around them, playing with toys and examining the furniture/toys/decorations/etc. while their parents talked to other parents like us. For so many weeks/months, Bella was unable to do any of that……but now that is all slowly changing.

There is much work to do….and Maria Isabella’s toddler-potential has yet to be seen…..so we continue praying and working and pushing her!

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Bella chair 4

Show and tell

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This week, Bella’s physical therapist, Karen, (who has been a HUGE blessing to our family, and truly loves Bella) invited her and Cristina to the physical therapy class she teaches at Old Dominion University. (which also happens to be my parents Alma Mater)

As her class has been learning about different birth defects, Karen wanted to present Bella and explain the various therapies and exercises that are done in order to help Bella learn to crawl, “roll” and one day, walk.

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Bella and the Physical Therapy program at ODU

We don’t know where we would be or what we would do without Karen! What a blessing it is to have people who are so generous and who sincerely love Bella….we owe so much to all of her doctors and nurses (she’s pretty famous at our local Children’s Hospital of the King’s Daughters) What a gift it is to know that there are many who love and serve children with special needs…..God is too good to us!

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She’s smiling because of how much the Doctors and Nurses love her at CHKD…….and well, Elmo might be helping a little bit, too

All Saints

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I’ve decided that since a whole year has passed….it’s time to get things back together for this blog!

What a year….since last October…..what a year! For those of you who have been following – it’s been quite the eventful 12 months! Last we checked in, we were making the move from New York City (then NJ/PA for a few months) down to Virginia Beach, Virginia. Due to financial difficulties after the In-Utero surgery that Cristina and Maria Isabella underwent for Spina Bifida repair, followed by Maria Isabella’s “2nd birth” via C-Section……we decided it was best to spend a year living with my parents, in a small room over-the-garage. Heck of a way to spend the 1st year of marriage! Don’t get me wrong….we were/are grateful for the opportunity….but it’s worth adding that God truly has a sense of humor. Sometimes Cristina and I jokingly regret doing this during our wedding mass!

Still, there is so much to tell since we’ve been in Virginia Beach…..from multiple ER visits, brace fittings, Spina-Bifida clinics, a birthday party (interrupted by an ER visit in the middle of the cake-cutting!) to wheel-chair fittings and even us purchasing a house!

Throughout all of it, however, God’s presence and Grace have guided us. That, is for sure. Even in our darkest moments, when we’ve been unable to see the light at the end of the tunnel…..He has been there….and He has sent us the right people and opened all of the doors for us to go through. (and closed the doors that would have sent us on the wrong path)

Please see our pictures below!

We continue to beg for your prayers and now that things seemed to have settled down (and us settled in to our new home!) to update our blog more often!

May God bless you and may Our Lady continue to intercede for you!

In Christ,

Andrew, Cristina and Maria Isabella Pocta

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With our realtor, Bob Smith, closing on our new home!

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A 1 year reunion of our Ronald McDonald House roommates – all mothers and children who underwent In-Utero surgery for Spina Bifida Repair at CHOP!

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Our little munchkin…..mooching off of mommy’s dinner! Who said babies don’t know how to manipulate?!

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Trying on Aunt Carol’s glasses!

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Did we mention that Mother Teresa is CONSTANTLY following us around?!

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Mother’s group celebrating All Saint’s Day!

Some help for our friends!

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Anyone who knows us knows that we’ve been open to the idea of adoption for a long time now. It’s a beautiful gift to both the family and the child being adopted. It seems that now more than ever, in 2012, it is very timely to bring up this great gift.

Some of our close friends (check out their blog here) down here in Virginia Beach have been discerning the call to adopt for a long time now. After much discernment and even some heartbreaking experiences….they are now set to adopt!

But, there’s one thing.  Yep…you guessed it. Fundraising.

Just another sign of the anti-life culture that the enemy is trying to cultivate here – make it almost impossible for a holy, loving and joyful couple to adopt because of money.

But they’re not gonna let money – this invention of man – stop them from God’s Will!

So here’s why we’re writing this.

They need to fund raise – and fund raise ALOT.

How’s about a-20,0000-lot. Yep, you heard that right. 20,000 for them to proceed and we’re gonna help them.

Now, I know that we’re not gonna be able to raise everything with this blog post, but it’s a start….and I would ask your help, too. Please go to their site and click the DONATE button….and consider giving whatever you can! Trust me, it’s safe.

Also – PLEASE share this post, share the link to their blog and share their story!

Christ created us for community…..and how else can we live in community here in the USA? Sharing of our time and talent. In this case – our financial gifts.

Imagine if we got 200 people to each give 10 dollars? that’d be a BIG start!

Also, and this is even more important than those few dollars, PLEASE PRAY FOR THEM! Pray for Matt and Kim as they prepare for their baby, and pray for the mother as she carries this beautiful child!

And please, don’t hesitate to send them a message or two….you can bet that the discouragement will come (it’s natural) and they’re gonna need all the support and prayers that they can get!

We promise to keep you posted as things develop…and we will alert you of any fundraisers that Matt and Kim put on here in Virginia Beach!

God bless you!

Andrew, Cristina and Maria Isabella

News

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Wow…..it’s been a while since we’ve posted…..and a lot has happened!

Let me recap:

For starters, and for a number of reasons, Cristina, Maria Isabella and I had to relocate to Virginia Beach where this little family is starting it’s new life. While relocating to Virginia was always something we were serious about doing, we never expected it to happen so fast…so we literally went from Camden, NJ to New York City to Virginia Beach, all within a 3-4 week period. Although it was tough to leave the city….and the Archdiocese….we know that this is where God wants us and He has opened doors for work and for our current home…..we can’t complain!

Bella was only a month old here!

One of the reasons we had to move was to find a more stable job. Don’t get me wrong, leaving for work from 8am-5pm has been quite the transition for all of us, we were so blessed these past 2 years.  This time last year, we were preparing for our wedding and both Cristina and I were blessed to work in the same building together! To add to that, once Cristina and Maria Isabella had their initial surgeries and we were relocated to the Ronald McDonald House in Camden, NJ, I was able to work remotely…so we were together every day for 4 months! Now my poor wife has had to leave her family to move to a city where she’ll need to get her driver’s license and learn how to navigate the streets!  But through it all, we know that Our Lord is doing something bigger than we can see…..and though the change has been tough, Cristina is becoming one tough momma.

Maria Isabella, as you can see, is doing very well for her age. She’s our little hero and each day she proves to be even tougher than what we had previously thought. One of the reasons had to move was because of the Children’s Hospital where Bella would receive her initial care. While New York City and Philadelphia offered great programs and state-of-the-art facilities, it would have been too much for us to have to travel to either one on a weekly basis. Providentially, the Children’s Hospital of the King’s Daughters in Norfolk, VA, is close by and has a great team for their Spina Bifida program. Not only that but Bella has already had to see so many doctors in the past few months that we were at the hospital around 2-3 times a week! Thank God for their hard work and love for the children that they serve!

As for details, there a few things that we would ask prayers for.

One of the biggest concerns we had, and also one of the biggest reasons we discerned the In-Utero surgery, was the benefits it showed in reducing the need for a shunt. While a shunt isn’t the end-of-the-world, we are relieved to know that up until this point, Maria Isabella’s fluids are stable and it seems that she will avoid the need for a shunt.

With Spina Bifida – Myelomeningocele, especially where Bella’s spine was exposed (in between L1-L5), the bladder and kidneys are usually the first to be effected. As part of the nerve damage that was done before we were even aware of her Spina Bifida, her bladder is abnormally shaped and seems to have some leakage…while we are blessed that Maria Isabella is able to urinate on her own for now, she still leaves a little too much urine in her bladder. As we saw in a highly specialized Urodynamics test that was done last week, there is some slight damage and irritation going on from that leftover urine towards one of her kidneys. The orders we have right now are to continue  giving her antibiotics nightly to prevent infection and in January, another test will be done to find out if a)the bladder repairs itself or b)if she will need to begin using a catheter a few times a day in order to fully empty her bladder. Only time will tell….please keep this in your prayers!

The other prayer that we beg for is the movement in her legs. While she seems to wiggle her feet and sometimes ‘lift’ her legs, there isn’t much movement going on. Luckily, here in Virginia Beach there is a strong Early Intervention Program with much experience with children with Spina Bifida, so Maria Isabella has already gotten her first few visits from their team. Here’s what she’s got going :

The reality is that we won’t know much about her ability to walk until she gets a little older….but she has so many who are rooting for her and are dedicated to helping her get as strong as she can! What peace we have in knowing that in the end, He is in charge! Whatever His Will may be, we pray for the strength to be the best parents that Maria Isabella could possibly have. What a blessing it is to have such supportive family and friends!

Please keep us in your prayers….now that we’re back in action, we will update with news as the next few months pass!

Here are some of our latest family pics:

 She loves to look at our dear friend Cardinal Dolan’s picture!

She looks just like her mother when she wakes up in the morning….

She loves her cousin….even if he calls her “Bugga”

Bella with her grandmothers

Bella with her Godsister

She loves taking pictures…

…but forreal mom. Enough is enough!!!

His Hand in All of This…

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For the past few several weeks, Cristina and I have been constantly reminded that “He is in control” and that “…there is really nothing we can do, other than wait”. Both of these realizations, while good for our Faith and strengthening for our marriage, are nonetheless sobering.

Every once-in-a-while, during the most difficult moments of this whole recuparation process, the fears/anxieties/sadness of the unknown hit us like a ton of bricks and we have what we call our weekly “emotional breakdown”….which usually last only an hour or two.

“What if something happens and they have to deliver Maria Isabella too early? How are we going to afford all of these medical bills, when all is said and done? What if this whole surgery doesn’t do everything that we hoped it would? Will Bella be able to walk as she grows up? Will we be good parents to a child with special needs?”

or

“This time of pregnancy is supposed to be a fun time of joy, and we should be with family and friends showing off the cute ‘baby bump’, instead of being locked up in this house all day! Why is this happening to us? What is God trying to teach us in all of this?”

…and the list goes on.

I know this may sound ‘rough’ or a little ‘blunt’ but I have to share a recent reflection that God has been confirming through the testimony of other parents here in the Ronald McDonald House.

With this type of situation, (awaiting a “special needs” or “out-of-the-ordinary” child) there comes the natural and well-intentioned response of friends and family: “I’m sooo sorry that you have to go through this” or “We have to be careful because we don’t want this to happen to any of your next children” and even the thought or insinuation of “Bella is going to come out PERFECT/FINE, just you wait!” or “God has given me a vision of Maria Isabella and she’s gonna come out 100% normal, just have faith!”

Don’t get me wrong, we are very hopeful! (and we try to be as faithful as humans can be, daily!) But, you have to understand something – Maria Isabella is who she is. She is a little mix of Pocta and Rivera, she seems to have a slightly dark skin tone (the Doctors told us when they operated on her back) and she has Spina Bifida. She always will. This is part of who she is. 

If she were any other way, she would not be our daughter. 

God has sent us to her….He has sent us here to Philly/NJ for a reason, for a Divine Purpose….and on the days that Cristina and I aren’t too consumed in focusing on our own problems, (instead of being present to those around us) we can see it in every interaction we encounter.

So….(and trust me, I say this with ALL of the LOVE in the world!) if you pray for us…or pray that Bella’s Spina Bifida wasn’t there anymore, instead pray not only that Cristina and I will be the best parents that we can possibly be to her, but that she will be free to grown in to the person that God has created her to be, free to love others and to teach others, all according to His Divine Plan.

His Hand is most definitely in ALL of this…..because trust me, if it wasn’t, Cristina and I would have quit a LONG time ago.

7 Week Update

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Today marks 7 weeks since Cristina and Maria Isabella’s fetal repair for the small defect (Spina Bifida) that was discovered 2 1/2 months ago.

Aside from a little scare from the ultrasound, everything is looking very good! Not only has Maria Isabella continued growing as expected, (and as hoped!) but she continues to move her legs and feet. Today we caught a quick glimpse of her toes twinkling…..and that is a VERY good thing!

Towards the end of the check-up, our nurse and ultrasound technician noticed something with Cristina’s cervix and both became very quiet for a moment. But they aren’t like that…..both are actually very joyful and ‘jolly’ about everything, each time that we visit for our check-up…so Cristina and I knew that something was up.

“Now…we don’t want you to start freaking out, cuz that won’t be good for the situation, Cristina, but we found a little dilation of the Cervix that is cause for a little concern….so we’re gonna go talk to the team and look a little further.”

The funny thing is that we didn’t start to worry….which is also out of the ordinary because we’ve become somewhat accustomed to worrying during our ultrasounds. (since the fateful day that they found the defect)

I looked at Cristina and we both, almost at the same moment, said to each other “I’m not worried. For some reason, I have that sense that He’s in control and there’s NOTHIN we can do about whatever is happening.”

So I step outside to ask the nurse a question and as they notice me coming out of the little sonogram room they all quiet down and look towards me, and quickly (and what seemed to be nervously) ask: “Is everything ok? We’ll be right in!”

Well….I didn’t want to freak Cristina out…so I walked back in and looked at her to say “Don’t worry babe….I’m sure it’s all gonna be fine and this is somewhat normal”…….as the ultrasound technician comes back in to do an alternative machine to examine the actual cervix.

What had happened was that the cervix site appeared to be extremely dilated (like in a woman that was 9 months pregnant, due ANY minute!) and they thought that Cristina was going to have to be hospitalized and it seemed like Maria Isabella was going to have to be delivered like….today!

FALSE ALARM, Praise God! Cristina had held her bladder for more than 2 hours in order to give them a good urine sample….and the bladder put so much pressure near the cervix site that the image they captured in the sonogram was actually a mere “focal” contraction in that area due to the pressure from the bladder. No need to worry, everything was OK!

After our appointment, we got the chance to visit with our friend, Avery, and her parents who are in CHOP all day while they wait for her to receive her monthly “heavy-dose” of Chemo/Radiation treatment to fight the cancer in her stomach. She’s quite a special girl, and has definitely been one of the people here at the Ronald McDonald House that makes our days go by a little bit faster. Please pray for her….she’s only 5 years old and has not only spent the past 7 months battling cancer, she has been in this Ronald McDonald House (away from her siblings/dad and the “normal” life of a 5 year-old) for the past 5 months….and she still has 4 to go. She’s a tough girl…but she’s got a ways to go, so please pray for her and her parents!

Here’s a little contest video we put together this past weekend for our Ronald McDonald House here in Camden New Jersey – as part of a Toyota Cars 4 Good contest. Our hope is to win a new Toyota for the Ronald McDonald House by getting the most “likes” on Facebook on June 21st. Check it out! I will remind you all when the date approaches!

Thank you for you prayers and support! Even though things look good….and God continues to bless us…..we still have a ways to go – 9 more weeks! In 2 weeks we will be approaching our half-way point…..so please continue to pray hard for Cristina and Maria Isabella! Your prayers and support mean so much to us, we always look forward to checking the mail downstairs and finding letters that you’ve sent to help keep Cristina from going crazy!

God bless you!

Andrew

6 Week Update (and ultrasound videos)!!!

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It’s hard to believe that it’s already been 6 weeks since Cristina and Maria Isabella’s Spina Bifida/Myelomeningocele fetal repair back on March 14th. For those of you who need the background info, here’s the post about the Surgery at CHOP (with Videos, separated by chapters) and also the posts from the day of surgery.

6 long weeks….and 10 more to go until Maria Isabella is delivered by C-section. (which is and will be necessary for all of our future deliveries because of the traumatic incision to the Uterus during fetal surgery)

Today was a very good day! Maria Isabella seems to be coming along great her hindbrain herniation has begun reversing – allowing a natural flow of fluids to/from her brain. Her head shape and the size of her ventricles (because of an increase of fluid build-up associated with Spina Bifida and Hydrocephalus) all remain “normal” and show no signs of concern…which is a HUGE relief. Our prayer is that this continue to stay the same and that the more time that Bella is in her mother’s womb, the more time she will have to heal.

Here are a couple of video clips I got of her Ultrasound today:

Here you can see Maria Isabella with her hands on her cheeks

In the first few seconds, you can see her move her hand across her face

In this video, notice Maria Isabella and her hiccups

Isn’t she gorgeous!? As you can see, she is coming along well! Please pray that this continues!

Let me thank you all for your continued prayer and help…we continue to receive letters/cards/packages in the mail and trust me, this has helped Cristina and I get through this whole thing….we feel your support and Christ’s presence through each and every one of you!

More updates to come!

In Christ,

Andrew, Cristina and Maria Isabella Pocta

Week 5 Update

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I apologize for not updating this earlier, but this is the first chance that I’ve had to sit down and write!

Praise God, yesterday’s check-up went very well…things seem to be coming along, slowly but surely. As always, the normal ultrasound exam was done to examine Maria Isabella’s spine, the surgery site on her little back and also the progress of her brain development and fluids.

Along with last week, we couldn’t ask for a better situation….Maria Isabella is progressing along in this pregnancy and her ventricles haven’t increased in size(due to the fluid levels) since the surgery. This is a VERY good thing! The Chiari Malformation (or  hindbrain herniation) which is one of the worst parts of having Spina Bifida, has actually reversed – allowing for a healthy flow of fluids to-and-from her head.

A is a baby with the herniation, B is without. (Maria Isabella’s brain is now looking more like B!)

This is what they look for when they measure her ventricles (gratefully, Bella’s are A LOT smaller now!)

Our prayer is that the ventricle fluid levels remain constant, or if they increase at all, (which is somewhat common with Spina Bifida, and not necessarily a reason for alarm) that they don’t increase to a dangerous level.

Let me tell you, our little daughter constantly confirms her stubbornness. Every night between 8-10pm, little Bella is movin’ away, kicking and doing flips….but once we get in to the hospital for her ultrasound, she goes right back in to a breached fetal position. Unfortunately, her movements still cause Cristina some pain (and will continue to, until she is born) but it’s all a good sign because it means that she is kicking and moving her feet and legs and there has been no sign of paralysis!

As for me, I am back in NY for the weekend to get a few things done here at the Office and at our apartment, (we are moving things out because we can’t afford rent at a place we aren’t even living in) but I will return to be with Cristina on Monday morning. Look at the gifts we received when I came in to the office today:

An Icon from Poland!

A statue of Our Lady – really pregnant!

Please continue to keep Cristina and Maria Isabella in your prayers…..thank you all who have been praying for us…who have mailed us or sent us things that have kept us busy during this time of waiting! Your support means so much to us…God bless you!

Also – everyone should see this little video that a mother made of her children….it’s pretty amazing…but with the rough statistic of 93% of babies diagnosed with Down Syndrome,  it’s a definite tearjerker!

World Down Syndrome Day

God bless you all!

In Christ,
Andrew, Cristina and Maria Isabella Pocta

What is this world coming to?!

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It’s pretty ironic that only a few days ago I posted an article about this….

Please please please read this article about a recent episode of DR PHIL (link to the episode on the Dr Phil website if you don’t believe me)

I know that once you start reading, it may be hard to continue…..but it’s important to know what kind of ideologies/beliefs/morality is being taught to us through the media…..notice towards the end of the episode how the majority of the audience seems to agree with the woman’s idea…..all because they’ve become “emotionally” involved. Disgusting.

A future world like this scares me.

http://liveactionnews.org/human-rights/dr-phil-show-advocates-for-mercy-killing-of-people-with-disabilities/

The article by Cassy Fiano at LiveActionNews:

This week on the popular Dr. Phil Show, a mother named Annette Corriveau was featured. She’s special because she wants the right to be able to kill her children.

That’s right. She is the mother of two severely disabled adult children, and she feels that the moral thing to do would be to kill them by lethal injection, to end their “suffering.” Her children were diagnosed with Sanfilippo syndrome, causing them to lose motor function and be institutionalized. They cannot speak, and they have to be fed through feeding tubes. Any more information on their condition wasn’t made clear – probably because, as Annette admitted, she visits her children only once every two months. The people who actually work with her children every day, and see them on a regular basis, and could therefore give a better idea of what their lives are like, were not interviewed for the show. We had only Annette’s point of view, which is that – according to her – if her children could choose, they would choose suicide.

She admits that she doesn’t know if they are in pain. She doesn’t know if they’re deaf or blind. She doesn’t know if they recognize her or not, and she doesn’t know what actions and activities, if any, are comforting to them. She doesn’t know if they are able to communicate in any way. She says that they’ve never left the facility they’re in over the past twenty years, but she also doesn’t disclose if she’s done anything to try to take her children out on trips – although considering that she visits them only once every two months, my guess would be no.

Yet she feels that, because she is their mother, she should be allowed to end their lives – because she doesn’t think their quality of life is worth living for.

Also invited on the show? Attorney Geoffrey Fleiger, who defended the infamous Dr. Jack Kevorkian. As we all know, Dr. Kevorkian performed assisted suicides for his patients, and the argument being made is that this is the same thing: helping people put themselves out of their own misery.

Assisted suicide arguments aside, there is a glaring difference between what Dr. Kevorkian was doing and what Annette Corriveau is advocating: these children wouldn’t be committing suicide. They wouldn’t be calling Dr. Kevorkian themselves. They aren’t consciously making that decision. It is a choice being made for them, by the person who is supposed to love and protect them. No matter how sympathetic you try to make yourself seem, this is murder, plain and simple. Taking someone’s life and calling it “merciful” does not change the fact that you are taking someone’s life.

The most disturbing part of all? Dr. Phil offered a weak rebuttal to her argument, but he still went on calling this an act of mercy to her children. He then polled the audience to see how many of them agreed with this mother.

Almost every single member of the audience did.

The woman crying at the end of that video was the one person speaking out for those children. She was given all of a minute, tops, to make her case for why murdering people with severe disabilities is abhorrent and wrong. And in that minute, she was able to pretty much hit the nail on the head: that you can’t kill your children just because it’s too much work for you to keep them alive.

This isn’t the first time Annette Corriveau has spoken publicly about this issue. She was featured in a documentary, Taking Mercy, along with a father who actually did kill his disabled daughter in the name of “mercy.” (You can watch the video here – it’s about fifteen minutes long.)

Robert Latimer, the other parent in Taking Mercy, murdered his daughter to end her “suffering” by putting her in the cab of his truck and letting her die of carbon monoxide poisoning. The affliction that meant that her life was not worth living? Cerebral palsy.

These two parents want to make it legal to murder your children if, as a parent, you feel that their lives aren’t worth living, because they are supposedly suffering too much. And what makes a life not worth living? Apparently, having a disability.

While you can’t argue that Annette Corriveau’s children are severely disabled, Robert Latimer’s daughter was nowhere near them in terms of disability. You can see her in videos, laughing and smiling. The reason he decided to kill her? She had to have surgery to repair her hip, another surgery in a long line of them, and he felt that her life was too “painful” to live. He says that after she died, he knew she was at peace. And of course, so was he.

What makes these people think they have the right to decide whether their child gets to live or die? Annette Corriveau repeatedly says that you can’t judge her unless you’ve “walked in her moccasins,” but that is a load of nonsense. This has nothing to do with being judgmental, and everything to do with refusing to open the door to euthanasia.

It’s repeatedly said that this should be between the parent and the physician, and no one else, but it isn’t the parent’s choice to make. You don’t get to decide whether someone’s life is worth living or not. You don’t get to decide that it’s better to murder people than let to let them live.

Perhaps the most frightening aspect of this entire argument – that “mercy killing” should be legalized – is the potential for a deadly slippery slope. If they get their way, then who gets to decide what the marker for quality of life is? Who chooses when life is worth living for someone else? What disabilities deserve a death sentence? Sure, Annette Corriveau’s children are severely disabled. But what about parents who feel that their child with, say, Down syndrome has poor quality of life and doesn’t deserve to live? Multiple sclerosis? Muscular dystrophy? Cerebral palsy?

There are hundreds of thousands of people in the world living with disabilities, and I’m sure they wouldn’t want someone deciding for them that their lives aren’t worth living and that as such, they’ll be murdered. The fact that this issue has been brought to prominence on The Dr. Phil Show and portrayed as a legitimate issue of compassion and mercy is horrifying; even worse is that so many of his viewers apparently feel that killing someone because of a disability is A-OK.

The reality here is that no one gets to play God and decide who lives and who dies, or whose life is worthwhile and whose isn’t. Just because you brought your children into the world doesn’t mean that you have the right to take them out of the world, whether it’s done in the name of mercy or not. Because no matter how you may try to paint the picture, there is absolutely nothing merciful or compassionate about murder.